A local family is spearheading the effort to raise awareness and money for Sanfilippo Syndrome, a rare fatal disease, after their daughter was diagnosed with it late in life.
Jeff and Kelly Wallis are hosting the second annual 5k walk/run for Abby’s Alliance March 9, 2019 at Memorial Park which will raise critical funds for Cure Sanfilippo Foundation. This is a non-profit geared to fund vital medical research to find a cure for Sanfilippo Syndrome which affects 1 in 70,000 children.
Abby was diagnosed with Autism when she was a child. At the age of 22, she was diagnosed with a slow progressing form of Sanfilippo. Her mother, Kelly, is battling stage IV cancer. She says the family, community and her faith keep her going.
To help and find out more information, visit www.abbysalliance.com
2nd Annual 5K Walk/Run
Memorial Park Picnic Loop
Saturday March 9, 2019
8 AM – 12 PM