Family of a girl with a rare skin disorder offers support to family of boy missing skin

Ja'bari Gray is in stable condition after undergoing surgery on his neck, according to his mother. 

Doctors are testing Ja'bari for epidermolysis bullosa (EB), a rare genetic skin disorder. A family from Spring with a similar story wants Ja'bari's family to know they're not alone.

Jordyn DePrato of Spring is a 9-year-old girl with a big smile but her life has been tough and she's constantly in pain. Her skin blisters so easily even putting on shoes can cause one. 

She was born with EB.

"We go over her body every night and anytime that there’s blisters we constantly pop them and put some type of antibacterial cream on it," said Robin DePrato, Jordyn's stepmother. 

Robin, says she was touched by Jabari’s story.

"I was glad that Texas Children’s was able to get a hold of him because they did wonders for her," added Robin. Jordyn spent the first 3 months of her life at Texas Children's Hospital. 

Robin also saw this as an opportunity to raise awareness about EB. Jordyn says it hard when people stare at her and say mean things about the way her skin looks.

"I just tell them that I was born this way," she said softly. 

Jordyn hopes Ja'bari gets better soon, and Robin wants his family not to give up hope.

"It can get better," Robin said. "And just lets make people aware of this. Lets find a cure!"